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Starter Kit for NWD/SEPs: Design Considerations for Publicly-Funded Matching Service Registries for Home and Community Services
Key ResourcesDSW-Provided Resources
This starter kit provides No Wrong Door/ Single Entry Point (NDW/SEP) systems guidance on how to design and develop Matching Service Registries (MSRs) to help connect seekers and providers of in-home LTSS. Many NWD/SEP systems are part of the Aging and Disability Resource Center (ADRC) initiative funded by ACL.
(PDF)
July 31, 2013

Building Capacity and Coordinating Support for Family Caregivers and the Direct Service Workforce
Key ResourcesDSW-Provided Resources
This report summarizes the common goals and policy recommendations emerging from the CMS Leadership Summit on the Direct Service Workforce and Family Caregivers, held in Washington, DC in September 2010.
(PDF)
April 28, 2011

2013 CMS Direct Service Workforce Resource Center Summer Webinar Series White Paper
DSW-Provided Resources
This white paper summarizes some of the common themes that emerged across the 2013 Summer Webinar Series, highlights successful strategies and recommendations made by presenters and commitments to action that mentioned by participants.
(PDF)
March 7, 2014

Reference Articles for Document List for 8-28-13 DSW RC Webinar
DSW-Provided Resources
This is a list of references for the 2013 Summer Webinar, Workforce Development in Participant-Directed Programs: Supporting Workers and Family Caregivers. It includes links to the articles.
(Word)
(PDF)
August 28, 2013

DSW RC Summer Webinar Series #4 Slides
DSW-Provided Resources
These are the slides from the Summer 2012 webinar, Workforce Development in Participant-Directed Programs: Supporting Workers and Family Caregivers. It focused on different opportunities and methods states can use to develop their workforce in Participant-Directed Models Supporting Workers and Family Caregivers in Participant-Directed Programs.
(Powerpoint)
(PDF)
August 28, 2013

2013-08-28 Workforce Development in Participant Directed Programs Supporting Workers and Family Caregivers
DSW-Provided Resources
This is a recording of the Summer 2012 webinar, Workforce Development in Participant-Directed Programs: Supporting Workers and Family Caregivers. It focused on different opportunities and methods states can use to develop their workforce in Participant-Directed Models Supporting Workers and Family Caregivers in Participant-Directed Programs.
(External Link) Caption: Webinar Recording • File type: audio
August 28, 2013

Issue Brief: Connecting Older Adults and Persons with Disabilities with Personal Care Assistance: The Potential of NWD/SEPs at Hosts for Publicly-Funded Matching Service Registries
DSW-Provided Resources
This issue brief provides an introduction to Matching Service Registries (MSRs) and how they can help connect seekers and providers of in-home LTSS. It focuses on the potential for No Wrong Door/ Single Entry Point (NDW/SEP) systems to host these registries. Many NWD/SEP systems are part of the Aging and Disability Resource Center (ADRC) initiative funded by ACL.
(PDF)
July 31, 2013

The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships
The Alzheimer’s Association and the Centers for Disease Control and Prevention’s
(CDC) Healthy Aging Program have developed the second in a series of road
maps to advance cognitive health as a vital, integral component of public health.
The Healthy Brain Initiative: The Public Health Road Map for State and National
Partnerships, 2013–2018, outlines how state and local public health agencies and
their partners can promote cognitive functioning, address cognitive impairment
for individuals living in the community, and help meet the needs of care partners.
Specific actions are addressed in four traditional domains of public health:
monitor and evaluate, educate and empower the nation, develop policy and mobilize
partnerships, and assure a competent workforce. Public health agencies and
private, non-profit, and governmental partners at the national, state, and local
levels are encouraged to work together on those actions that best fit their missions,
needs, interests, and capabilities. It has a strong focus on caregivers.
(External Link) • File type: web
(PDF)
June 30, 2013

Family Caregiving and Transitional Care: A Critical Review
The Family Caregiver Alliance released this report on the role of caregiving families as patients transition from one healthcare setting to another. It notes that family caregivers are rarely actively included in care planning and receive inadequate training. This frequently leads to preventable negative outcomes for patients.
(External Link)
(PDF)
November 30, 2012

Selected Caregiver Assessment Measures A Resource Inventory for Practitioners
The second edition of the Resource Inventory provides a compendium of caregiver assessment measures that are practice-oriented, practical and applicable, and which address the multidimensional aspects of the caregiving experience. They are for use by staff who work with family and informal caregivers of older persons and adults with disabilities.
(External Link)
(PDF)
November 30, 2012

AARP Policy Brief: Home Alone: Family Caregivers Providing Complex Chronic Care
The AARP Public Policy Institute and the United Hospital Fund undertook the first nationally representative population-based online survey of 1,677 family caregivers to determine what medical/nursing tasks they perform. This report reveals the complexity and difficulty of specific tasks, the lack of support and training family caregivers receive, and the effect on their quality of life. The findings highlight an urgent need for both individual and collective action.
(External Link) • File type: web
(PDF)
September 30, 2012

AARP Report Meeting the Needs of Diverse Family Caregivers
AARP conducted qualitative research using a series of focus groups with Hispanic and African American family caregivers, nurses and social workers across the nation. This brief report: defines who these family caregivers are and recognizes that many are taking on significant responsibilities as part of the “new normal for family caregiving; explores the needs of diverse family caregivers; and offers solutions for improving collaboration and communication between the families and the professionals.
(External Link) • File type: web
(PDF)
August 31, 2012

AARP Policy Brief Protecting Family Caregivers from Employment Discrimination
This report from the AARP Public Policy Institute identifies discrimination in the workplace encountered by workers with eldercare responsibilities as an emerging trend and highlights the limited protections for working caregivers. The report calls for developing public and private solutions to ensure that workers with eldercare responsibilities receive equal employment opportunity and are protected from workplace discrimination.
(PDF)
July 31, 2012

Long-Term Services and Supports Scorecard Website
This site allows for interaction with data from Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers a report from AARP, the Commonwealth Fund, and Scan Foundation. It includes state-specific rankings and results compared to benchmarks as well as the ability to generate customized, downloadable tables and bar charts comparing states.
(External Link)
April 12, 2012

Moving Toward Person- and Family-Centered Care
This Insight on the Issues from the AARP Public Policy Institute defines Person- and family-centered care (PFCC), highlights the importance of the family in a PFCC approach, and describes the key elements of PFCC in practice. Although research shows that PFCC improves quality of care and quality of life, it has not yet been fully integrated across health care and LTSS as an essential part of all care and support. However, the current shift in payment reform and service delivery away from disease or provider-focused models and toward incentives that reward better coordination, communication, and continuity of care, is likely to promote wider adoption and effective implementation of PFCC.
(External Link) • File type: web
(PDF)
February 29, 2012

A Call to Action Spotlight
This Spotlight report from the AARP Public Policy Institute is a follow-up to the AARP Solutions Forum, The Challenges of Family Caregiving: What Needs to Be Done? It summarizes 10 themes from the work of 10 authors of caregiving books and articles, and identifies four areas highlighted at the Forum in which public policies and communities can respond to the needs of family caregivers: greater public education and awareness; more financial relief; better communication, coordination, and collaboration with health care professionals; and heightened recognition of and support for family caregivers in policy initiatives.
(PDF)
January 31, 2012

GSA 2011 Paid and Family Caregivers
DSW-Provided Resources
These slides are from a presentation on the September 2010 CMS Leadership Summit on the Direct Service Workforce and Family Caregivers at the Gerontological Society of American annual meeting in Nov 2011.
(Powerpoint)
(PDF)
October 31, 2011

Using the Money Follows the Person Demonstration to Develop Direct Service Workforce
DSW-Provided Resources
This issue brief provides an overview of state-experience using MFP to develop DSW infrastructure and provides helpful tips for state MFP programs to advance efforts to improve recruitment and retention of direct service workers who help people with disabilities
(PDF)
June 30, 2011

QUICK TIP SHEET: Using the Money Follows the Person Demonstration to Develop Direct Service Workforce Infrastructure
DSW-Provided Resources
This issue brief provides helpful tips to state MFP programs to advance efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity.
(PDF)
June 30, 2011

AARP: The Growing Contributions and Costs of Family Caregivers
This report from AARP, Valuing the Invaluable: The Growing Contributions and Costs of Family Caregivers, updates national and individual state estimates of the economic value of family caregiving using the most current available data. In 2009, about 42.1 million family caregivers in the U.S. provided care to an adult with limitations in daily activities at any given point in time, and about 61.6 million provided care at some time during the year. The estimated economic value of their unpaid contributions was approximately $450 billion in 2009, up from an estimated $375 billion in 2007. The report also explains the contributions of family caregivers, details the costs and consequences of providing family care, and provides recommendations for policies that better support caregivers.
(External Link) • File type: web
(PDF)
June 30, 2011

Caregivers of Veterans – Serving on the Homefront
The United Health Foundation funded a Veteran Caregiver Study conducted by the National Alliance for Caregiving (NAC) in 2010. The study was based on a quantitative online survey with 462 self-identified family caregivers, age 18 or older, who provide care to a veteran whose injury, illness, or condition is related to military service.
(PDF) Caption: Full Report of Study Findings
June 3, 2011

Caregivers of Veterans – Serving on the Homefront: Executive Summary
The United Health Foundation funded a Veteran Caregiver Study conducted by the National Alliance for Caregiving (NAC) in 2010. The study was based on a quantitative online survey with 462 self-identified family caregivers, age 18 or older, who provide care to a veteran whose injury, illness, or condition is related to military service.
(PDF) Caption: Executive Summary
June 3, 2011

Caregivers of Veterans - Serving on the Homefront: Key Findings
The United Health Foundation funded a Veteran Caregiver Study conducted by the National Alliance for Caregiving (NAC) in 2010. The study was based on a quantitative online survey with 462 self-identified family caregivers, age 18 or older, who provide care to a veteran whose injury, illness, or condition is related to military service.
(PDF) Caption: Key Findings
June 3, 2011

Press Release: Caregivers of Veterans Face Greater Stress, More Years of Care than the National Average, Yet Are Proud to Serve
A press release on the study of "Caregivers of Veterans - Serving on the Homefront". The study was conducted by the National Alliance for Caregiving (NAC) and funded by United Health Foundation. It found family caregivers of veterans face a higher burden of care, both in intensity and duration, often supporting a spouse or partner over a longer period of time than typical family caregivers.
(External Link) Caption: Press Release • File type: web
June 3, 2011

OECD 2011-Help Wanted_e-LIGHT
This report entitled“Help wanted? Providing and Paying for Long-Term Care" is the result of a two-year project conducted between 2009 and 2010 by the OECD Health Division and Social Policy Division. The study points to key polices and strategies that can help address future demand for care and respond to the implications this will have for long-term care workforce and financing. It highlights examples of useful country experiences, but it also warns about the dearth of evidence on cost-effective policies in a number of areas, making a strong plea for advancing evidence-based research on long-term care (LTC). Additional material can be found on the webpage of the report: www.oecd.org/health/longtermcare/helpwanted. (external link)
(PDF)
April 30, 2011

Employer Best Practices for Workers with Caregiving Responsibilities
Information from the U.S. Equal Employment Opportunity Commission (EEOC) on best practices that will lessen the chance of equal employment opportunity (EEO) violations against workers who are also caregivers. Suggestions include having flexible workplace policies, including flexible work hours or work at home options for employees who are caregivers.
(External Link) Caption: Employer Best Practices for Workers with Caregiving Responsibilities • File type: web
December 31, 2010




Created by: EKDilla. Last Modification: Friday 18 of November, 2011 16:18:51 EST by EKDilla.

What's New?

The DSW Resource Center closed effective August 31, 2014. The site is being maintained as a static archive of resources through December 2014.

Please visit the CMS Workforce Page (external link) and visit our partners’ websites for additional information on or after December 31, 2014.

Check out the Winter 2014 edition of the DSW Resource Center newslettter!

The DSW Resource Center has published a White Paper summarizing this summer's webinar series.

The US Department of Labor (external link) announced a new rule to the Fair Labor and Standards Act which focuses on guaranteeing minimum wage and overtime for home care workers including those in the Direct Service Workforce. This rule will go into effect January 1, 2015. The DSW Resource Center created a Home Care Rule Page with information and resources related to this announcement.

We released two new Starter Kits for NWD/SEP Systems including ADRCS. Starter Kit for No Wrong Door/ Single Entry Point Systems Working to Strengthen the Home and Community-Based Direct Service Workforce and Starter Kit for NWD/SEPs: Design Considerations for Publicly-Funded Matching Service Registries for Home and Community Services.

We published Coverage of Direct Service Workforce Continuing Education and Training within Medicaid Policy and Rate Setting - A Toolkit which presents strategies and methods for covering the cost of continuing education and training for the DSW.
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